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Privacy Policy and Terms of Use

Our Commitment to Privacy

The Robert J. Nessen Pancreatic Cancer Foundation, Inc. (“The RJN Foundation”) respects the privacy of every individual who visits (“Web site”). This notice explains our online information practices. Because our visitors’ privacy is important to us, we provide them with notice and choices about the collection and use of their information in some detail. By visiting, visitors accept the practices described in this Privacy Notice. The RJN Foundation reserves the right to modify or update this privacy statement at any time without prior notice.


A cookie is a small data file that a Web site may send to a visitor’s browser and which may then be stored on the visitor’s hard drive. Our Web site uses cookies so we can automatically recognize visitors and allow them to move within areas of our Web site without reintroducing themselves or re-entering their preferences. No personally identifiable information is stored in these cookies. Most browsers will allow a user to accept or deny cookies. If a visitor rejects our cookies, they can still use our site. We use cookies to help us understand how visitors use our Web site. The RJN Foundation also uses IP addresses to analyze trends, administer the Web site, track movement and gather broad demographic information for aggregate use. Our Web site also may use other technologies to track which pages on our Web site our visitors view. All of this is designed to improve our visitors’ experiences.

Disclaimer on Information and Advice

The Web site is intended for personal use by individuals coping with and/or recovering from pancreatic cancer, as well as their caregivers, individuals who are supporting friends and loved ones with pancreatic cancer, and individuals who are interested in learning more about topics related to pancreatic cancer. The goal of the Web site is to provide information to these audiences to educate them about pancreatic cancer, as well as enable patients to more effectively advocate for themselves and participate in making decisions with their health care team and other professionals. The information contained on the Web site is not intended to provide professional medical, financial or legal advice, nor is it a replacement for obtaining professional medical care. Visitors should consult a trained medical professional for consultation, diagnosis and treatment of pancreatic cancer and should consult a trained legal or financial professional for any legal or financial advice related to these topics.

A Special Note about Children Viewing the Site

This Web site is not intended for children, and we ask that minors do not submit personal information. If you are a minor, you may only use the Web site in conjunction with a parent or guardian and must agree not to provide any personal information for any third party or create any profiles on behalf of any other person.

Does The RJN Foundation Share Information I’ve provided?

The RJN Foundation may need to share certain information about visitors with third parties in limited circumstances, including releasing information to third parties who perform services on our behalf such as: advising you of upcoming events, products, volunteer opportunities, pancreatic cancer information, and processing credit card payments.

Data Collection

Internal Use

We collect the following information:

Standard Web server traffic pattern information: General traffic, site usage, and length of stay information is collected and stored in log files. Log files are transaction records maintained on web servers to record information such as: service provider (IP address); browser versions; referring web sites; search terms used; average number of pages requested; average duration of visit; total visitor traffic, etc. This type of information is shared externally only on an aggregated basis.

Personal information: We do not collect personally identifiable information from visitors unless they provide it to us voluntarily and knowingly. For example, if a visitor personalizes the Web site, volunteers, orders informational materials, requests information, or donates, we may collect the following information: first and last name, street address, city, state, zip code, telephone number, email address and subject of inquiry.

Requests: If visitors submit online requests for The RJN Foundation products, such as free brochures, or if they submit a question through a “contact us” query, we may have to gather additional information from them to respond to the request. Such information will vary with the request, but often includes name, shipping address, telephone number and email address.

External Use

Personal information may be needed for certain optional online activities. Visitors’ health-related information is privileged and confidential and will not be shared or released to any organization or business entity other than those affiliated or working in conjunction with The RJN Foundation.

We use third parties to provide visitors with the following services:

If a visitor chooses to donate to our organization through the Web site, a third party (PayPal) collects standard credit card information (card number, card type, expiration date) and keeps a record of the visitor’s financial transaction. Credit card numbers are held only until the charge can be processed. PayPal processes financial transactions (donations and registrations) via encrypted SSL sessions. SSL is the industry standard for securing Web-messaging transactions. Please visit to access the PayPal Privacy Policy.

Data Security

We are committed to protecting the security of visitors’ personal information and to honoring their choices for its intended use. To prevent unauthorized access, maintain data accuracy, and ensure the correct use of information, we strive to maintain physical, electronic, and administrative safeguards. We store data in password-controlled servers. Our staff and volunteers are educated about the importance of safeguarding visitors’ information and we are committed to protecting confidentiality. However, such precautions do not guarantee that our Web site is invulnerable to all security breakdowns. The RJN Foundation makes no warranty, guarantee, or representation that our Web site is protected from viruses, security threats, or other vulnerabilities or that visitor information always will be secure.

Whenever The RJN Foundation permits an external third party to access personally-identifiable information, we follow appropriate procedures to help ensure that the information is used only for authorized purposes and in a manner consistent with the choices visitors have made under this privacy statement, and that the security, integrity and privacy of the information is maintained. While The RJN Foundation will employ procedures to help ensure that visitor information is only used for authorized purposes as described above, we cannot make any guarantees with respect to the actions or policies of such third parties.

External Links

Our privacy policies apply only to visitors’ use of the RJN Foundation Web site. This site contains links to other sites, including sites that have an official relationship with us. We do not disclose personally identifiable information to the organizations that operate these linked sites and we are not responsible for their privacy practices or site content. Links to other sites do not imply an endorsement of the materials or policies on those Web sites. Visitors should read the privacy policies of each site they visit to determine what information that site may be collecting about them.

Opting-out, Corrections and Cancellations

If visitors have any questions about our privacy policy, the information we have collected from them online, the practices of this site, please contact us via e-mail at the below-listed address.

Upon request, The RJN Foundation will (a) correct personal information that is erroneous; or (b) permit visitors to opt out of further e-mail contact. To request a correction or cancellation, or if visitors have any questions concerning this privacy statement or our information gathering and dissemination practices, please contact: This e-mail address is being protected from spambots. You need JavaScript enabled to view it




Through the kindness and generosity of our donors The Robert J. Nessen Pancreatic Cancer Foundation can provide resources to fund vital pancreatic cancer research.

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